From the Children’s Tumor Foundation, Simon Vukeli, Chief Marketing Officer, and Volunteer and Philly Cupid’s Undie Run Race Director, Sandy Frenia, discussed Neurofibromatosis (NF), a chronic disease in which benign tumors grow into the patient’s nerves. Depending on the severity, it can be undiagnosed until late in life or cause serious complications such as seizures, blindness, deafness, immobility or other impairments. In some cases, it can lead to rare cancers. The disease is genetic and that is why the Foundation became the Children’s Tumor Foundation, you are born with it, 1 in 3,000 births. Diagnosis comes from tell-tale birthmarks or through developing symptoms. The Foundation directly funds research, referrals and hosts the world’s largest NF Conference.
Looking to raise money volunteers created the Cupid‘s Undie Run, a ‘brief’ fun run that happens in the middle of a party. In Philadelphia, it will be Saturday, February 19 at Xfinity Live! Guests wear their ‘Bedroom Best’ to help fund the research for a cure, better treatment, and education programs.
For more information visit ctf.org
To register for the Cupid’s Undie Run go to cupids.org
The Childrens Tumor Foundation